I hope everyone has had either a really great February or at least a semi-awesome one. As I stated last month I am not going to do my daily blogging because it can really be depressing that way so I’m just going to give you my February highlights;
I think it really stinks that The meds that we thought were giving me a little bit of lets call it “help”have stopped. (enter sad face)
So far have only been to the hospital once this month and to three doctor appointments. The Hospital visit was actually a good one. The doctor was very caring and actually helped me out. My three Dr appts were OK.
This month has been I’ve had a lot of pain this month with my hands, my feet and severe spinal pain but I’ve been doing the best that I can.
On a happy note my foster kittens are now almost 2 pounds which means they will be able to go up for adoption next week and I’m really excited for their futures! Being a foster parent for one of the Animal Shelters here has been such a blessing to me.
I was able to go on a motorcycle ride on the 13th which was pretty fun I love when I’m finally able to ride every week. Riding clears my head and makes me feel good even if I’m feeling crappy inside.
This past Tuesday on the 16th I did a whole bunch of blood tests and I hope to have those results by next Monday. I am worried but, the truth is, it is what it is! I guess i can always go to Narnia. HA!
I encourage you all to check out Loveyourmelon. They are a group of college students who help kids with cancer by selling these super cute beanies. I absolutely love mine!
On a very serious note, i really want to take a second of everyone’s time and talk about how you should talk to someone with a chronic/terminal disease. I know i have talked about this before, but after reading this last months 2 separate support group page posts, i am a little upset. It would appear that people in general do not know what to say to those of us who are sick and usually end up doing on of two things:
- Telling us what you would do differently, if you were in our shoes
- Try and push on us every article/book/post that interests yourself that you think will benefit us if we just read it.
First off you are not in our shoes, so please do not tell us what you would do. because honestly you don’t know what you would do. You are not in our shoes just like we are not in yours. Do you like people telling you how to raise your children? Do you like people telling you how to live your life? who to date? what to eat? Etc??? Then please do NOT do this to us.
Secondly, if you find something that interests you like an article, a book or whatever and you want to SHARE it with us, share it with us, don’t cram it down on our throats. Again just because YOU enjoy the material, it DOES NOT mean we will.
Now i am not saying to never talk about things to us, just find a decent way of doing it. Like hey i read yesterday apples help with inflammation, did you know that? BUT AGAIN have some compassion because chances are we have heard this same info from 20 other people trying to be helpful. So just say what you need to and then carry on. If we “continue” the conversation, then talk to us about it. If we change the subject do not get butt hurt. We just get tired of all our conversations being about all these cures/natural medicines etc. TRUST ME if it helped we would ALL BE DOING IT. I love what one “spoonie” said the other day,
“nothing spreads faster with the sick than a cure.”
If there was a CURE, we would not be sick. Many of us feel this way. Please do not think we are not actively searching on our own for help. I personally have tried a million things, read books, listened to others etc. BUT here i am still sick. I have researched people who have stopped eating certain foods, stopped as many chemicals from being in their homes etc and they are still sick. Do you really think we just sit around enjoying being sick? Do you think we like taking poisons in HOPES it will help? Do you think we like visiting the Dr more than we see our families? Do you think i love being sick? This picture shows my life most days……
I just finished 2 books this month on the “health” topics and i have already done a few of the things these books have recommended just because to ME,the information/suggestions do make sense. But in no way do i believe everything i read or change in my life is going to CURE me. The only thing i know for sure is that i have HOPE.
I hope this clears up a few things for some of you. Trust me, i know you are just trying to help, but really your just pushing us away and making us feel worse than we already do. So please take my advise and just be gentle on how you bring things to us. Remember what i said above, you would not like it if someone told you all the time how they WOULD live your life or what you SHOULD do that would make your life better. Love one another, lift each other up, not tear us down. I LOVE Emily Mcdowell cards, they say it all…
Have A fabulous weekend….And remember life is SHORT, do not waste even a SECOND!