Living second to second

*****ignore the grammar, this voice program stinks……it must have gone to a school in Nevada*****hahahahaha

This week i was surprised what i got done…especially after i told myself…live second to second……

July 18th Today we got in a short motorcycle ride and aldo bought a few new ridung shirts. Its nice to get new things sometimes:-)
Sat 19th we enjoyed an amazing HOG chapter ride to Georgetown CA. This by far was one of my favorite rides because of how beautiful the ride was. I could not take enough pictures! If you have never been, i highly recommend it! 🙂 If you have ever been to Virginia City Nv, this small town has a similar feel. Thanks Lisa for a great ride and Christine for leading our team:-)


****for some reason pictures for this ride are not loading so i will try again later tonight….

Monday

I actually had a little bit of energy today I went to Donner Lake and enjoyed God’s beautiful beautiful scenery! Places like this remind me of all the beauty God has given us! Donner Lake is very special to me so it was great to be back up there.Had a really good talk with my friend Christine Who really pulled me out of a sad issue i was dealing with! Friends are so important, and ones that stick it through even the hardest times ROCK!! I  also walked Khali at the marina 2 miles!!

  

Tuesday

Today I had a very severe leg cramps ones where you just want to chop off your legs and throwing in the garbage disposal and that’s being nice!!! But still managed to make it to the marina and walk my 2 miles. At 6 PM I did my chemo meds and then went to bed early due to my pain.

Wednesday

Today was my doctor appointment with my new specialist who I want to say I like but I’m a little hesitant. She’s been terrific the two times I’ve seen her but I’m still nervous as whoever I pick is going to be in charge of my health so I feel like I need to be kind of picky. But so far she’s been amazing she also told me how she believes I have my version of RA and what she wants to start doing about it. And with her evidence, a little of my blood tests and some of  my scans ,I can definitely see where she’s getting her thoughts from. So I have decided to go along with her treatment plan which means I will  not only do my chemo meds but I will also inject into my legs every week a biologic. For those of you that don’t know what a biologic is it is similar to a chemo drug it does exactly the same thing essentially it shuts down your immune system and fights the disease that way so if you are sick please stay far far far away for me!! I was also told that because we are mixing with the chemo and a biologic drug & my predisposed family genes that I will be more receptive to cancer and other catastrophic things so we have to do my blood every six weeks to try to keep an eyeball on that so it’s kind of scary and I’m a little nervous but I’m going to give it six months. It’s in six months I see no changes as far as my disease then I am just going to have to stop this fight as far as from the doctors point of view and all these poisons that I’m putting in my body. It’s getting to the point where I’m tired of being a guinea pig and my quality of life isn’t great and when you and I always yucky meds into the mix it’s worse. And this is all like really emotional to me so that’s all I like to say at this time about this situation.

Thursday

Today really hit me how emotional I am about starting more poison drugs and how much I don’t want to do it but  I don’t want people to think that I’m a quitter because I’m not! But at the same time I just want to touch someone and show them how i feel everyday, why I don’t want to do this anymore. If any of you could feel my pain, you’d run!!

It’s been a hard week, so  A friend of mine Christine invited me over for a coloring therapy session tonight and that’s what I did we colored for two hours and I had a lot of fun and I realize that I really need to do this more often it was very helpful! Thanks Christine for having me over next time we’re going to have some dinner too!! FYI…We are the best color artists ever…if someone wants to join us…please let us know!!!!

Friday

A lot happened today I will just say that I had a really bad experience with Honda Reno and I’m going to leave it at that, because they promised to fix the situation by next Friday so if by next Friday they haven’t fixed the situation then I will be sure to put it in my blog what happened.

I also have been working on the front and backyard as you can see below with the before and after pictures. The teens in my church helped pull weeds and move rocks for me last month so that this month I was able to plant some grass and it’s finally starting to grow as you can see from the pictures yes I have a green thumb and yes I am that awesome! I also was able to do a tribute to Brian’s mother and to my grandfather two great people that were gone to soon:-)



Saturday I did the marina walk which was another 2 miles and this time Brian came along to help with the dog and we had a great time then we went home and watch some TV as I was not feeling very good.
***Side notes I have decided that I’m going to start paddle boarding I think it’s going to help get my mind off of things and it’s gonna be great exercise! I have contacted someone who I am hoping is going to help me do this as she also has one of the same diseases that i have and she is doing it!!  So keep your eye out for affordable boards.

I also want to take a moment and tell the younger generation how important it is to love yourself before others. Too often i see young adults changing their facebook status like i change my underwear.  Listen i make mistakes;we all do and thats why i am speaking out about this. I want you to learn what no one took the time to teach me!!  You can do it on your own!!! You don’t need some other  young person to help you make it in this world. There is plenty of time to have a partner. And to all the parents i see leaving comments like im so happy for you EVERY time there is a new relationship status on your child’s status,you are part of the problem.  Teach OUR future to be strong and independent!  Love is not just a word that should be used freely….


This weeks challenge is to pick up your bible, pick a page and read! I love doing this 🙂

This weeks Bible Verse

Ecclesiastes 12

“A life with out God can produce a bitter, lonely and hopeless old age. A Life centered around God is fulfilling; it makes the evil days, when disabilities, sickness and handicaps cause barriers to enjoy life!”

I hope that everyone had a great week and I would just like to say that I’m very grateful for those of you that read my blog and have recommended my blog to other people.  I’m very grateful and I hope that I can continue to help others! I think it’s important just to make it second the second a lot of people say just make it to tomorrow well people that have chronic and her terminal diseases tomorrow seems so far away so I always say make it second to second because sometimes that’s all we got.

 

2 thoughts on “Living second to second”

    1. Oh Thank YOU so much for leaving a comment! I love when i can help anyone even if it is just a little bit. Yes RA and all his little friends that i have are not very nice but by the Grace of GOD, i continue on. If you ever want to share your story, let me know! I really want to get others sharing, i believe everyone has something to offer! Again thanks for reaching out,have a great day 😉

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