I hope that everybody has had a great past few weeks. I have been busy being sick fighting this damn disease and have had very little time to keep everyone updated…..BUT I have a few minutes to spare before I go back to bed….and I guess I will spend them with YOU….FEEL LUCKY
Here is where we left off…
Tuesday, November 24 Well lets just say I spent the day in bed….it was chemo day. Although I did crawl out of bed long enough to get my Christmas tree out and put together. Damn did that wear me OUT. This was a reminder of just how little energy I have most days.
Wednesday the 25th I woke with severe spine pain!!! I HATE how chemo drugs mixed with my disease attack my spine. AARG THIS was a stay in bed all day kind of day!
Thursday the 26th was thanksgiving…. I managed to eat some turkey , potatoes and stuffing. I did not let my belly be the boss today ……however this is how I felt later in the day.. Internal bleeding is zero fun ;-(
Friday the 27th I stayed in bed wishing I could go shopping or at least go out and have some coffee…
Saturday I woke up and I couldn’t move my hands for hours OH HOW I LOVE MY DISEASE!! But I was super grateful my girlfriend made me a Christmas tree to go with my Christmas décor. I love how perfect it is for me!! Thanks Blondie
Sunday I worked for a few hours and even visited with Santa…He better bring me some gifts…I only ask for a warm plug in blanket and some carhartt socks. Part of my disease does not allow my blood to circulate so I freeze all year long. These items would make my life MUCH better. Side NOTE…I used to ask for jewelry, cars and clothes and now its stuff to help me get through my health SHIT….Funny how things change.
Monday the 30th I worked…I love where I work, I know I say it all the time BUT everyone I work with is so Awesome and they don’t make me feel sick. Sundays and Mondays really FORCE me to get away from my bed ridden disease. A BIG hug to all I work with, you all are super special 😉
I started DECEMBER off with a BANG and I did my chemo drugs and it was just a crappy day as USUAL. WOOHOO BAH HUMBUG
Wednesday, December 2 I was very sick in fact I was in bed until 7 PM vomiting and I HAD FLU Like feelings but I had to drive to Sacramento at 8pm so I could pick my BFF up at the airport. Super excited to see RHONDA!!
December 3 I went in for my second treatment and this time Brian tagged along so he could learn how to do them so I could later on do them at home. I feel like such a puss when I allow tears to fall down my cheek as they push the drugs into my system. I just hate all these chemicals in my body. I just do NOT know which is worse the drugs or just letting the disease KILL me. Sometimes I just want to let the disease take over because I am suffering anyways so what is the fucking point?! Just another one of these damn days….
Friday Dec 4th, I am very sick and I was in bed until 7 PM again which really pissed my off because my BFF flew from LA NOT to watch to watch me suffer and or sleep all day. BUT this is MY fucking life and this is what I do every week!!!! I just feel so guilty sometimes that my body doesn’t care who is visiting or who wants to do something.
Saturday Dec 5th is a very important day to Brian and I and we had plans but so DID my asshole disease. He however was able to take me and Rhonda to dinner and I was able to eat half of a Boca burger . YA I got to eat!!!!!! Later in the evening Rhonda and i made each other wreaths! they turned out great and we made another memory. In the end that is what life is all about! I can’t tell you how happy i am having her here visiting. I am just sad i was in bed or in the bathroom more than i was with her. Rhonda if my disease takes me before we see each other again know i love you times INFINITI. No one has ever stuck around like you. She never said, i was to sick to be around or that she didn’t want to watch me die like other friends did. You are what a real friend IS. Thank YOU
December 6th I made it work or rather crawled to work….(although I bet none of you knew how I sick I felt) I can HIDE IT WELL. 😉 I then drove back to Sacramento to drop Rhonda off back at the airport. Then very carefully drop back over icy Donner. It took me 2 hours longer to get home. When you start with ZERO energy and then have to do all I did….lets just say it SUCKED. If I could just find a way to get rid of a QUARTER of this pain, I would…
December 7th I made it to work AGAIN. YA ME!!!! I am so grateful for the customers who always put a smile on my face every Monday. They have no idea how much I am suffering inside and to hear the compliments they tell me really make my day. Also Colin the 49er Elf keeps me busy and I heard he keeps the crew on their toes during the days I don’t work. I am very happy Colin found a new job…. HA! This coming weekend I will be bringing Colin’s girlfriend by the Gun Range for a conjugal visit. She misses him. 😉 See what you all miss at the Range? You should make time to come down and see us all! I mean it is the only place where Colin the elf will model an UZI for you!!
December 8th (yesterday) I woke up and could not feel my legs and left arm. I guess I am now having a reaction to the chemo and other drug mixing! SHOCKING!!! Lol So because of this I could not do my chemo meds last night because I was miserable. Today was also a day where i just stood in the shower crying as more of my hair fell to the floor. I never thought my hair had to so much pull on my life. Sometimes i just feel so ugly and i am tired of wearing bandannas. I just want my old life BACK…or parts of it.
December 9th is TODAY bitches…..I woke up at 11, forced myself to get up and take the DOG to the park and enjoyed the fresh air. Picked up my meds and came back home to go back to bed. And well now I am writing to all of you because some of you are impatient…HEEHEE I am just teasing….I love how many followers I have now and how many of you write to talk to me about your crap and or happy experiences(do we have many?! ;-)) with your disease. My online support group is how i get through most days.
I really hope everyone is enjoying their month of December so far. Before I got my death sentence/millionth diagnosis, Christmas was my favorite time of the year. However now it makes me a little sad, I have no energy to do as much décor as I would like, or to go shopping(and since being on disability and living with a chronic painful disease I can’t work but 2 days now so $$$ is low) or to travel anywhere. Sometimes this month just reminds me just how unlucky I am. I am too exhausted to do anything, this is the month 3 years ago I started weekly chemo drugs. This is the month I just sit and stare at my tree praying that magically it will decorate itself because I am so exhausted after just putting it together and then I am also reminded that I will have to take it all apart in a few weeks….UGGG
Anyways being negative or being stuck in my own head doesn’t help although I know writing and sharing this helps others in my same situation. So i will just keep at it, one day at a time…fuck that…one second at a time because that is really what I AM DOING….and i think most days i do it pretty well…
Ok so here is where I bitch or INFORM you all on something , in OTHER words this is my opinion, take it or leave it i don’t care ….
So today I open carried.. (yes ken and Greg, I can hear your comments and evil stares..) to the store to pick up my meds. Anyways the cashier asked how she can carry a gun. I then asked her if she has ever trained or anything and she said NO and that she just want to own one.****** This is what I told her …..i want to be a ballerina so I will just go and buy some ballerina shoes and a tutu and then magically I will dance like a ballerina. She quickly replied with, “you can’t just be a ballerina like that, you need training.” As I walked off I said, EXACTLY…..go check out Reno Guns 😉 I heard her say your right thanks, I will check it out. 😉 With that said, I think it is SUPER important for anyone to train and practice practice practice. Being a gun owner is like anything else, you need to keep up your skills. Women( I say women because I have more women who quietly send me messages because they are nervous and or scared to be around guns) do NOT be afraid to come in and train. Don’t be afraid to be around guns, remember guns DO NOT OPERATE BY THEMSELVES. Talk to me about anything and if I don’t know the answer I work with some amazing guys that will have an answer. At Reno Guns we have some great instructors and like a customer said last week to me….they are cute to look at too. 😉
I also want to take a second to address some other readers/bloggers recent blogs about how how can some people be so sick and look so good. Many of us who look “GOOD” on the outside understand this issue. In many of our cases, it is our INSIDES that are sick which YOU CANT SEE. This is why they call it “invisible disease.” Or when someone asks what your disease is and then they want to tell you what to do for it, when they know ZERO about it. In the end we know our fight, and we do NOT need to PROVE to anyone anything and we certainly do not need to listen to others rude comments about what they WOULD do if they had our disease. —-This is one of my favorite—- We have a hard enough time with loved ones, doctors etc, we don’t need shit from bystanders. Love yourself always even if it IS just second to second